Hunter Syndrome (MPS II) is a rare degenerative disorder that, when left untreated, affects all functions of the child’s body. Until recently, children with MPS II could expect to live into their early teenage years. But there is hope. Recent advances have resulted in two treatments that some children are able to access. We need more. We need a cure. We need approved treatment for every family affected because each of those children deserve life. That is what is at the heart of this charity: giving hope to the children and families who are, or will one day be, diagnosed with Hunter Syndrome.
Just like Alice plunged into Wonderland, all families diagnosed with MPSII are plunged into a world previously unknown to them that they must learn to navigate. Just like Alice, this world is beautiful and nightmarish at the same time. The beauty and joy of life is never more clear than when the life of one’s child is threatened.
Join them for a truly unique, wonderful, and maybe even unpredictable, Gala where we will journey into Wonderland for just one evening. Share in celebrating the joy of life and raising critically needed funds for research.
Date:Saturday September 24, 2011
Cocktail Reception 6:00pm
Emcees: Kid Carson & Amy Beeman from 94.5 The Beat
Special Performances: DJ Flipout, Dirty Radio, Will Blunderfield
Official Spokesperson: Amanda Tapping
Features: Live & Silent Auctions
Where: The Sutton Place Hotel, 845 Burrard St. Vancouver, BC
For Tickets, please contact firstname.lastname@example.org
Follow them on Twitter: @onceuponacure